Cancer Patients Europe

Cancer Patients Europe

CPE is an advocacy organisation based in Belgium that advocates for the rights and needs of cancer patients and their families. They are dedicated to raising awareness and understanding of the challenges faced by cancer patients and their families and strive to ensure that all cancer patients and their families have access to the best possible treatment and care, and to build a supportive environment for them. CPE works with healthcare professionals, policy makers, and other stakeholders to develop and advance policies that promote patient rights, access to care, and research for better treatments. They also provide resources and support for cancer patients and their families, to help them navigate through the healthcare system and cope with the challenges of living with cancer.

Role within ThermoBreast

CPE ensures the involvement of patients at different stages (prevention/monitoring) and needs:

  • Elucidation of patient needs
  • Analysis of ethical, and social aspects applicable to ThermoBreast
  • Communication
  • Dissemination

 

In detail CPE:

  • Collects stakeholder requirements, recommendations, and policy expectations in workshops and surveys
  • Gathers end-user perspectives, i.e., from patients with surveys and focus groups
  • Prepares a White Paper, which will include recommendations on future guidelines and international regulations based on results from the clinical validation
  • Organises the final event at the European Parliament
  • Explores the required explainability of the ThermoBreast screening process and modality to enable a trustworthy solution. Create (user journey) scenarios with personas (one for each relevant stakeholder group represented by CPE)
  • Raises awareness of and gains interest in the project using CPEs and other participants’ established networks and social media channels
  • Prepares regular newsletters and press releases
  • Distributes printed materials to the project stakeholders

Antonella Cardone

WP2 Design, WP8 Evaluation and WP9 Outreach Co-lead

Juan-Jose Ventura

WP2 Design, WP8 Evaluation and WP9 Outreach Co-lead

Tristan Hanssen

WP2 Design, WP8 Evaluation and WP9 Outreach Co-lead

Chiara Mangano

WP2 Design, WP8 Evaluation and WP9 Outreach Co-lead

Joana Kokalari

WP2 Design, WP8 Evaluation and WP9 Outreach Co-lead